project65roses' Profile
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On October 30, 2009, my niece Caroline was born. Shortly thereafter, a blood test revealed that she has cystic fibrosis. Cystic fibrosis is a life-threatening genetic disease that primarily impacts the lungs and pancreas - leading to severe lung infections and reduced ability to absorb fats (and more importantly fat soluble vitamins) that, taken together, substantially reduce life expectancy.
On April 24, 2010, my brother and his friend Matt will be participating in the Extreme Hike for the Cure to support the Cystic Fibrosis Foundation. The hike is a 30.1 mile trek through the mountains of North Carolina. Their goal is to raise $10,000.
In talking about his fundraising efforts, my brother mentioned the significance of the phrase "65 roses." "Sixty-five roses" is what some children with CF call their disease, because those words are easier for...
- Female
- Joined March 4, 2010
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- project65roses
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Richmond, VA,
United States
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project65roses
the 65 roses project