Announcement With your purchase, support our charity Stichting Energy4All.
With your purchase, support our charity Stichting Energy4All.
Ohana Sisters for Charity for energy4all foundation
We are four (in-laws) sisters; Marit, Rianne, Hester and Paulien.
Paulien is seriously ill, she has an energy metabolism disease (mitochondrial disease) that slowly causes her body to deteriorate. We hope that a medicine will come soon so that she can be with us for a long time.
Paulien is now 39 years old, the average lifespan with her form of the disease is between 30 & 40 years. And then she has a mild form. Many fellow sufferers have not grown old... That is so merciless and intensely sad.
There is no cure for these diseases yet, but fortunately drug research is already well advanced. The potential drug has already been tested in adult patients and testing in children is so underway. That gives hope! However, a lot of money is still needed for the final stages.
The Energy4All Foundation structurally supports this research by Professor Jan Smeitink and his team from Khondrion and Radboudumc. This charity is very close to us, which is why we are taking action in our own way to make people familiar with energy metabolism diseases and to raise money for this important research. Also, help us with your purchase to stop these diseases. Thank you!