Scarlett Clay's Profile
I started this shop to raise money for research.
My son was diagnosed with Type 2 Cockayne Syndrome in April of 2011. I decided to begin making and selling hand-crafted cards to raise funds for Cockayne Syndrome research, because there is currently no treatment for children affected by CS. But there is research being done in the US and the UK. They are working towards a treatment!
**Update: My beautiful little boy passed away on Feb. 1, 2014, at the age of 3 and a half years. I have decided to continue on with my fundraising efforts in his memory, and to honor all CS families who deal with this heartbreaking illness.
What is CS?
CS is a tragic childhood disease that causes premature aging and a shortened lifespan.
The butterfly is…
- Joined June 12, 2011