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Jadon's Daddy's Profile

About

Updated 8-10-14
I am a stay at home Dad to the coolest little FIVE year old boy who happens to have Spinal Muscular Atrophy (SMA) Type 1. Gracyn Jaye was born December 14, 2012 and is unaffected by SMA. SMA is the # 1 genetic killer of children under 2 years old and it has altered our lives dramatically. I quit my job to take care of Jadon aka "The BUG", and feel so blessed to do so. SMA is a horrible disease but we have decided to dance in the rain of life's storm instead of waiting for it to pass. We appreciate every moment we have with the BUG and he is the center of our universe.

You can find out more about SMA at our website: JadonsHope.org

I started our ETSY shop to not only contribute to our household, and medical expenses but also raise money for SMA research. This disease will be cured!…

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  • Male
  • Born on December 6
  • Joined October 31, 2011

Favorite materials

Wood, Glass, Wire, Metal, Stone, Paint, Canvas, Clay

Shop

About

Updated 8-10-14
I am a stay at home Dad to the coolest little FIVE year old boy who happens to have Spinal Muscular Atrophy (SMA) Type 1. Gracyn Jaye was born December 14, 2012 and is unaffected by SMA. SMA is the # 1 genetic killer of children under 2 years old and it has altered our lives dramatically. I quit my job to take care of Jadon aka "The BUG", and feel so blessed to do so. SMA is a horrible disease but we have decided to dance in the rain of life's storm instead of waiting for it to pass. We appreciate every moment we have with the BUG and he is the center of our universe.

You can find out more about SMA at our website: JadonsHope.org

I started our ETSY shop to not only contribute to our household, and medical expenses but also raise money for SMA research. This disease will be cured!

I must use every opportunity to increase awareness of SMA and that includes this shop. 1 in 40 people carry the gene that causes SMA but most people have never heard of it.

To read more about our little hero, "The BUG" please check out our blog at: http://jadonshope.wordpress.com/


This is BUG's House and we thank you for checking it out. Please come back often as I am sure to be adding more and more different things, who knows what might be here next time.

On December 14, 2012 we were blessed with a daughter (SMA free) and she has altered "The BUG's House" dramatically. While my biggest passion for creating has been woodworking that will likely not find much attention for quite some time. I am attempting to discover new mediums and outlets for the creativity, but it has to be something I can do inside and be able to walk away from quickly in case The BUG or The LadyBug need anything. Check back to see what I come up with. Right now I am trying clay, fabric panels, and canvas painting. Let's see what happens.

CURE SMA

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