Jadon's Daddy's Profile
I am a stay at home Dad to the coolest little FIVE year old boy who happens to have Spinal Muscular Atrophy (SMA) Type 1. Gracyn Jaye was born December 14, 2012 and is unaffected by SMA. SMA is the # 1 genetic killer of children under 2 years old and it has altered our lives dramatically. I quit my job to take care of Jadon aka "The BUG", and feel so blessed to do so. SMA is a horrible disease but we have decided to dance in the rain of life's storm instead of waiting for it to pass. We appreciate every moment we have with the BUG and he is the center of our universe.
You can find out more about SMA at our website: JadonsHope.org
I started our ETSY shop to not only contribute to our household, and medical expenses but also raise money for SMA research. This disease will be cured!…
- Born on December 6
- Joined October 31, 2011