Monique Griffin's Profile

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Hello! I decided to open an ESTY shop to help raise funds for Pompe research. I was diagnosed with Pompe Disease in January 2010 and have been fighting back against Pompe ever since!

Part of my treatment includes sitting in a chair receiving Lumizyme, an enzyme replacement therapy, via an IV every two weeks for the rest of my life. I wanted to do something more than just read books and watch movies during my 'chair' time so I decided to start making jewelry. I also felt it was important to give back to the Pompe community that has done so much for me. So a portion of each sale will be donated to the University of Florida Foundation and designated to Pompe research.

If you would like to know more about Pompe Disease, you can visit pompe.com. You can also visit my blog which…

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  • Female
  • Joined July 31, 2010

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Pearls of course

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About

Thank you for stopping by!

Hello! I decided to open an ESTY shop to help raise funds for Pompe research. I was diagnosed with Pompe Disease in January 2010 and have been fighting back against Pompe ever since!

Part of my treatment includes sitting in a chair receiving Lumizyme, an enzyme replacement therapy, via an IV every two weeks for the rest of my life. I wanted to do something more than just read books and watch movies during my 'chair' time so I decided to start making jewelry. I also felt it was important to give back to the Pompe community that has done so much for me. So a portion of each sale will be donated to the University of Florida Foundation and designated to Pompe research.

If you would like to know more about Pompe Disease, you can visit pompe.com. You can also visit my blog which documents my own journey with Pompe at purplelv93.wordpress.com

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